The British Society for Immunology
British Coalition of Heritable Disorders of Connective Tissue
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The Telangiectasia Self Help Group was founded in 1985 to maintain a register of sufferers and to put affected families in touch with one another.
The group was initially funded by a donation from the Thames/LWT Telethon Trust. A newsletter is sent to all members on an occasional basis informing them of the developments in the treatments of this disease.
The link address is: http://www.telangiectasia.cwc.net/