British Society for Rheumatology > Knowledge > Registers > Ankylosing Spondylitis register

Ankylosing Spondylitis register

Knowledge * Registers * Ankylosing Spondylitis register

This register launched in April 2012 monitored the long-term safety of these treatments and increased our understanding of their effects. This included studying their efficacy, cost-efficacy, toxicity and information on the effects of discontinuing treatment or switching agents. The register recruited patients with ankylosing spondylitis who were being prescribed particular biologics, as well as a control group of patients who had not been prescribed them.

The register has been run by Professor Gary Macfarlane and Dr Gareth Jones of the Epidemiology Group at the University of Aberdeen. You will find further details of the AS Register here. Recruitment to the register worked differently from recruitment to the rheumatoid arthritis register. Hospital sites agreed to be part of the study, so recruitment was only possible for the patients who were treated in those centres.

If you are an NHS clinician, health professional or research network staff with a query about the AS register then contact the register team in Aberdeen.

Rheumatoid arthritis register

The register tracks the progress of patients with severe rheumatoid arthritis who are receiving various biologic agents in order to monitor the safety and effectiveness of these treatments over the long term.

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Psoriatic Arthritis register

We are pleased to announce the launch of the Psoriatic Arthritis register. Preparatory work for this study is underway, and it is anticipated that recruitment will open in 2018.

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Juvenile idiopathic arthritis register

This register collects detailed information on the effectiveness and safety of children with juvenile idiopathic arthritis.

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