Knowledge * Registers * Juvenile Idiopathic Arthritis register

The British Society for Paediatric and Adolescent Rheumatology Etanercept registry, established in 2004, collects detailed information on the effectiveness and safety of Etanercept in children with Juvenile Idiopathic Arthritis. A parallel group of children with Juvenile Idiopathic Arthritis treated with Methotrexate is also being recruited in order to compare side effects and long term outcomes between the two treatment groups. The study, previously known as the Biologics and New Drugs Register, moved to The University of Manchester to sit among the other national rheumatic disease biologic registers.

If you are an NHS clinician, health professional or research network staff with a recruitment query about a child or for more information about the register in juvenile idiopathic arthritis, contact Dr Emily Sutton.

Rheumatoid arthritis register

The register tracks the progress of patients with severe rheumatoid arthritis who are receiving various biologic agents in order to monitor the safety and effectiveness of these treatments over the long term.

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Ankylosing spondylitis register

The register recruits patients with ankylosing spondylitis who are being prescribed particular biologics, as well as a control group of patients who have not been prescribed them.

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