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Overview

Date: 2020 TBC

Venue: 2020 TBC

 

Paediatric and Adolescent Research Day

The Paediatric and Adolescent Rheumatology Conference is the dedicated conference for paediatric and adolescent rheumatology in the UK, which provides a unique forum bringing together multidisciplinary teams who manage paediatric rheumatology.

  • Learn about the most up-to-date clinical and research advances from experts in paediatric and adolescent rheumatology

  • Network with peers from all paediatric rheumatology units in the UK

  • Wind down and meet friends and colleagues at its popular social event over dinner, drinks and entertainment

  • Earn CPD credits (approved by the Royal College of Paediatric and Child Health)

Objectives

  • To understand the impact of wrist disease on JIA prognosis, the role of MRI in evaluating subclinical arthritis and the role of arthroscopic synovectomy preventing joint damage

  • To develop an understanding of the role of complement in autoinflammatory diseases

  • To understand the age-specific pathomechanisms involved in childhood-onset SLE

  • To highlight how understanding developments in other diseases, such as rheumatoid arthritis in adults and cancer in children, can improve our understanding and management of paediatric rheumatic diseases

  • To help Allied Health Professionals develop research skills that will turn ideas into research projects

  • To understand how MRI can be used to guide treatment in Juvenile Dermatomyositis and an update on management of refractory disease

  • To improve skills in managing children with rheumatic disorders and learning or behavioural problems, with specific focus on chronic pain management and transition

2019 programme

Tuesday 8 October

Morning sessions
09:00-12:30

Includes the MDT role and JIA and the wrist


Time

Session title

Speakers

08:00-08:50

Registration


08:50-09:00

Welcome address

Dr Kathy Bailey and Dr Eslam Al-Abadi

09:00-10:40

Session 1: JIA and the wrist

Chairs: Prof Tommy Lindau and Dr Flora McErlane

09:00-09:25

JIA classification and the wrist joint

Prof Taunton Southwood

09:25-09:40

The burden of wrist disease in JIA

Claire Pidgeon

09:40-10:00

The role of MRI in monitoring arthritis of the wrist

Dr Karl Johnson

10:00-10:20

The role of arthroscopic synovectecomy in wrist arthritis

Miss Kerstin Oestreich

10:20-10:40

Initial cohort outcome and future

Dr William Coles

10:40-11:10

Refreshment break, posters and exhibition

11:10-12:30

Session 2: The MDT role

Chairs: Penny Davis and Karen Davies

11:10-11:30

The MDT outside the clinic

Hannah Garratt-Kirk

11:30-11:50

The role and value of third party involvement in the BCH paediatric rheumatology MDT

Dawn Bovey-Pilkington

11:50-12:10

London 2012 to Birmingham 2022... Do healthcare professionals have a role in 'inspiring a generation'?

Dr Kathryn Harrison

12:10-12:30

Give it a go

Lottie Mayne

12:30-13:30

Lunch, posters and exhibition


Afternoon sessions
13:30-18:00

Includes parallel AHP session and SIG meetings


Time

Session title

Speakers

13:30-15:30

Session 3: SLE

Chairs: Dr Clive Ryder and Dr Clarissa Pilkington

13:30-14:10

Neuropsychiatric lupus disease

Prof Caroline Gordon

14:10-14:35

How the UK JSLE Cohort Study is improving our understanding of JSLE across the country

Prof Michael W Beresford

14:35-14:45

UK JSLE BPSU Study update

Dr Hanna Lythgoe

14:45-15:10

Age-specific pathomechanisms in JSLE

Dr Christian Hedrich

15:10-15:30

Target Lupus

Dr Eve Smith

13:30-15:30

Session 4: holistic care

Chairs: Lottie Mayne and Hannah Garratt-Kirk

13:30-14:10

Motivating patients with chronic conditions

Gemma O'Leary

14:10-14:50

I wish I had JIA! What is it like to be the sibling of a child with a chronic condition?

Emily Earle

14:50-15:30

How to ensure patients with JIA are well nourished

Victoria Fisher

15:30-16:00

Refreshment break, posters and exhibition

16:00-16:45

Session 5: Thieves Market

Chairs: Dr Jacqui Clinch and Dr William Coles

16:00-16:45

Case reports

16:45-18:00

SIG meeting 1

Trainees

16:45-18:00

SIG meeting 2

AHP pharmacists

16:45-18:00

SIG meeting 3

CNS

16:45-18:00

SIG meeting 4

Clinical affairs

Wednesday 9 October

Early morning sessions
08:00-13:00

Includes research for the AHP and poster showcase


Time

Session title

Speakers

08:00-08:45

SIG meeting 1

JDM

08:00-08:45

SIG meeting 2

SLE

08:00-08:45

SIG meeting 3

JIA

09:00-08:45

SIG meeting 4

Scleroderma/vasculitis

09:00-09:05

Welcome to day two

Dr Eslam Al-Abadi

09:00-11:05

Session 6: Learning from others

Chairs: Prof Taunton Southwood and Prof Lucy Wedderburn

09:05-09:45

Biological factors that limit sustained remission in rheumatoid arthritis (the BioFlare study)

Dr Andrew Filer

09:45-10:25

Post-transcriptional control of gene expression as a novel therapeutic target in arthritis

Prof Andy Clark

10:25-11:05

Unlocking the secrets of childhood brain cancer with medical imaging – are the concepts transferable to Inflammation?

Prof Andrew Peet

09:05-11:05

Session 7: Research for the AHP – from idea to project

Chairs: Ruth Howman and Lottie Mayne

09:10-09:40

AHPs in research

Victoria Harbottle

09:40-10:10

How to...?

Ross Edgar

10:10-10:40

Health Professionals in Research: the dark side of the force

Dr Yeliz Prior

10:40-11:05

Q&A

Panel

11:05-11:30

Refreshment break, posters and exhibition

11:30-13:00

Session 8: Autoinflammation/Behçet's Disease

Chairs: Dr Clare Pain and Dr Charris Papadopoulou

11:30-12:00

How do Behçet's mouth ulcers differ from other disease?

Dr Ana Poveda Gallego

12:00-12:30

How do I manage Behçet's disease?

Dr Deva Situnayake

12:30-13:00

Complement in autoinflammatory diseases

Prof Paul Brogan

11:30-13:00

Session 9: Patient safety/Learning and behavioural difficulties

Chairs: Pamela Whitworth and Hannah Garratt-Kirk

11:30-12:00

DMARD/Biologics safety monitoring: The role of electronic databases

Nicky Freeman

12:00-12:30

Managing chronic pain in children with learning/behavioural problems

Lottie Mayne and Claire Pidgeon

12:30-13:00

Transition for children with learning difficulties and chronic medical problems

Marie McGee

13:00-14:00

Lunch, posters and exhibition

 

13:00-14:00

Symposium/Innovation session

 

Afternoon sessions
14:00-17:00

Focusing on JDM


Time

Session title

Speakers

14:00-17:10

Session 10: JDM

Chairs: Dr Liza McCann & Dr Neil Martin

14:00-14:25

MRI features of disease activity

Dr Karl Johnson

14:25-14:50

How we use MRI for monitoring disease activity

Dr Kapil Gargh

14:50-15:10

Managing difficult JDM; new therapeutic options

Dr Charris Papadopoulou

14:00-15:10

Session 10: Charities meeting and update

Charity representatives

15:10-15:30

Refreshment break, posters and exhibition

 

15.30-16.30

Members meeting update on future plans of BSPAR Section Council

Dr Kathy Bailey, Vice-President, BSPAR Section Council

16.30-17:00

Closing remarks

Dr Eslam Al-Abadi