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Overview

Date: 16-19 September 2019

Venue: Royal Free London – Prof Chris Denton and Dr Voon Ong

Venue: Royal Hallamshire Hospital, Sheffield – Dr Mohammed Akil

The Scleroderma Fellowship provides hands-on clinical experience across a four day programme, delivered by leading experts in the management of scleroderma at nationally-recognised specialised centres.

By the end of the fellowship, you will have increased your knowledge and skills in:

  • Undertaking comprehensive clinical assessment of scleroderma cases (including Modified Rodnan score and practical use of microvascular diagnostics)

  • Multi-speciality management and treatment initiation and follow-up and the role of specialist nurses

  • Assessing and managing cardiac, respiratory, renal, skin and gastrointestinal involvement and severe digital vascular disease

  • Recent clinical trials and emerging therapy

  • Understanding the treatment options for severe progressive disease including the use of Autologous Haematopoietic Stem Cell transplantation

  • Assessing patients with systemic sclerosis

  • Assessing and managing Rayanud’s and digital ulcers

  • Assessing and screening for cardiac and pulmonary complications

  • Screening for pulmonary hypertension

  • Setting up combined clinics

  • Selecting patients for stem cell transplant

Programme

Programme topics include:

  • Setting up a service and overview of scleroderma management

  • Overview of management of systemic sclerosis

  • Scleroderma specialist nursing service

  • Tackling vasculopathy in systemic sclerosis

  • Dermatology for scleroderma patients

  • Surgical treatments in scleroderma

  • Setting up a microvascular service for scleroderma

  • Case-based discussions

  • Developing a CMR service in CTD scleroderma

  • Scleroderma data collection and clinical research

  • Collaborative gastrointestinal service in scleroderma

  • Clinical trials in scleroderma

  • Scleroderma: how do we measure it? Organ specific and comprehensive clinical scores

  • Role of autologous haemopoietic stem cell transplant in scleroderma

  • Pulmonary hypertension: screening and management

  • Cardio-pulmonary complications

  • Assessment and management of Raynaud’s and digital ischaemia related to scleroderma

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