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Overview

British Society for Rheumatology paediatric and adolescent guidance notes have been ratified by BSPAR section council. They are designed to support those working in paediatric and adolescent care.

Guidance notes are developed to support professionals in several ways, including encouraging a consistent approach to care delivery, promoting the effective use of resources and reducing the likelihood of inappropriate care. Overall, the most important potential benefit is the improvement of the quality of care received by the patient and better health outcomes.

Treatment approaches can vary between clinicians and these guidance notes provide an opportunity to set out best practice based on current evidence or expert consensus. They will help to increase consistency in practice and promote the highest standards of care.

Recommendations provided are intended to improve the quality of clinical decision-making, but each individual circumstance may be different and this should be taken into consideration. These notes are subject to revision; we welcome your feedback on any of the documents below.

Please note that many of these documents have been produced in collaboration with other organisations, details of which can be found within each specific guidance note.

Current guidance

Standards of care for JIA

A statement of minimum standards of care required by children and young people with JIA
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Screening for uveitis in JIA

Guidance for screening to reduce the incidence of visual impairment in children and young people with JIA
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Prescribing for children and young people

Standards and responsibilities for shared care protocol for immuno-modulating drugs
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Core competencies for Clinical Nurse Specialists and Advanced Nurse Practitioners

Administering disease modifying anti-rheumatic drugs (DMARDs) and biologic therapies to children and young people with rheumatological conditions
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Management of symptomatic hypermobility in children and young people

Further information for health professionals involved in the management of children and young people with symptomatic hypermobility
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Core competencies for AHPs

Competencies for therapists (OTs and physiotherapists) involved in the care of children and young people with rheumatology conditions
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RCN guidance

Administering subcutaneous methotrexate for inflammatory arthritis Evidence-based guidance for the safe and confident administration of subcutaneous methotrexate in a variety of primary and secondary care settings

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Adolescent transition care
Two-part guidance for seamless transfer

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PRES and SHARE guidance

Antiphospholipid syndrome Fourteen evidence-based recommendations for the diagnosis and treatment of paediatric antiphospholipid syndrome (APS).

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Autoinflammatory diseases
Evidence-based recommendations for the management of the autoinflammatory diseases cryopyrin associated periodic syndromes (CAPS), tumour necrosis factor (TNF) receptor associated periodic syndrome (TRAPS) and mevalonate kinase deficiency (MKD).

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Dermatomyositis
Evidence-based recommendations for the diagnosis and treatment of patients with juvenile dermatomyositis. In total, the document sets out 7 overarching principles, 33 recommendations on diagnosis and 19 on therapy.

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Lupus Evidence-based recommendations to optimise and disseminate management regimens for children and young adults with rheumatic diseases such as childhood-onset systemic lupus erythematosus (cSLE). Recommendations for cSLE include 11 on diagnosis, nine on disease monitoring and five on general treatment.

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Transitional care This is the first international set of recommendations and standards for transitional care of young people with juvenile-onset rheumatic diseases and aims to facilitate high-quality models of care for new and existing services.

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