Earlier this year, the UK Juvenile Onset Systemic Lupus Erythematosus (JSLE) Study Group came together at Alder Hey Children’s Hospital, Liverpool, to discuss its exciting research portfolio.
The group was founded in 2006 (by Professor Michael Beresford) and leads the UK JSLE Cohort Study and Repository, the largest in Europe, including >700 patients, across 22 centres.
There were updates on a number of interesting initiatives being led by the group, including:
The British Paediatric Surveillance Unit (BPSU) study of JSLE
TARGET LUPUS – ‘Targeting disease, Agreeing Recommendations and reducing Glucocorticoids through Effective Treatment, in lupus’ which aims to develop a JSLE treat-to-target study
Investigation of genetic factors in JSLE
Understanding the immunopathology of JSLE: translational studies led from the UK’s ‘Experimental Arthritis Treatment Centre for Children (EATC4Children)’
UK implementation of the Single Hub and Access Point for paediatric rheumatology in Europe (SHARE) JSLE recommendations
The meeting was supported by Lupus UK, represented by Kevin Weston (Chair), Sammy Ainsworth and Paul Howard. To find out more, take a look at their website or contact Robertsc@liverpool.ac.uk. The group will next meet on Tuesday 17 March 2020.