Registers | British Society for Rheumatology

Overview

BSR operates four biologics and biosimilars registers; three for adult patients and one for children and young adults.

The data collected from the registers generates vital evidence on patient safety in the long term as well as the efficacy of treatment.

Members and non-members can access this data for research purposes – find out more below.

Data requests are regularly reviewed by our Registers' and Research Committee. There are three deadlines by which data requests should be submitted: the end of January, May, and October. To ensure that your data access request is reviewed in a timely fashion, please submit your data access requests prior to these dates.

Requesting registers data

At BSR, we’re committed to recognising individuals, services, and organisations that demonstrate excellence in delivering patient-centred care.
We’re especially proud to celebrate the outstanding people behind the success of the BSR biologics and biosimilars registers.

Meet our current Registers Champions — learn from their experiences and be inspired by their dedication to improving patient care.

Our Registers Champions

Rheumatoid Arthritis Biologics register for rheumatoid arthritis, operated in partnership with the University of Manchester

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Psoriatic Arthritis Register for psoriatic arthritis, operated in partnership with the University of Aberdeen

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Juvenile Idiopathic Arthritis JIA register (Etanercept study) running alongside the BCRD study. Operated in partnership with the University of Manchester

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Ankylosing Spondylitis Biologic register for ankylosing spondylitis, operated in partnership with the University of Aberdeen

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Published papers The biologics and biosimilars registers are a rich source of evidence for clinicians and researchers; find papers using registers data here

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Requesting registers data Find out how you can access and analyse the rich registers datasets that the society holds

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