Acknowledgements
|
|
This report was prepared by members of the NEIAA Operations Team, using data provided by patients and staff within the NHS. The key messages and national recommendations have been co-produced with the NEIAA Senior Governance Group, Project Working Group and Patient Panel. The continued success of this national clinical audit is due to the hard work and commitment of the rheumatology clinical community and patients, and everybody who gives their time to support the BSR audit team. Thank you.
We are particularly grateful to all the clinical and administrative staff and patients who contribute data to NEIAA during what continues to be a challenging time in healthcare.
King’s College London (KCL)
The Centre for Rheumatic Diseases at King’s College London has provided methodological and analytical support for NEIAA from its outset.
Net Solving
Established in 2001, Net Solving has spent over a decade perfecting the art of clinical data collection. It has revolutionised the way clinical data collection is conducted by pioneering the move to integrated online data collection methods, leveraging the latest technology to provide highly accurate data collection and analysis. Its market-leading platform CaseCapture™ is the culmination of 15 years’ experience in creating many of the largest clinical data collection web platforms in the UK and worldwide. Net Solving is wholly committed to its continuing work with BSR on NEIAA.
|
Methods and Measuring the data
|
|
|
|
References
|
|
- References: References used throughout the Year 5 report
|
Governance and Patient Involvement
|
|
NEIAA is carried out by the British Society for Rheumatology (BSR) with support from King’s College London and Netsolving.
BSR is the leading UK specialist medical society for rheumatology and musculoskeletal (MSK) care professionals. We support our members to deliver the best care at all stages of the care pathway, improving the lives of children and adults with rheumatic and MSK disease.
NEIAA has an independent patient panel, who have reviewed and contributed to key messages and national recommendations, and whose Chair and Deputy Chair sit on the Project Working Group.
The patient panel comprises:
- Paul Amlani-Hatcher (Chair)
- Roger Stevens (Deputy Chair)
- Kate Wilkins
- Ruth Williams
- Tom Esterine
The NEIAA senior governance and project working groups, convened by BSR, are composed of members of the rheumatology community, including representatives across the Multi-Disciplinary Team (MDT) as well as patient charities. They contributed towards the key messages and national recommendations in this State of the Nation report and provide ongoing support and guidance to the BSR team to ensure the programme is clinical-led, relevant, impactful and stays on track.
Senior Governance Group
- Jo Ledingham; Former NEIAA Clinical Lead and Incumbent President, BSR (Incumbent Chair)
- Sanjeev Patel; Former President, BSR (Former Chair)
- Sarah Campbell; Former Director of Practice and Quality and Incumbent Chief Executive, BSR (Incumbent Vice-Chair)
- Ali Rivett; Former CEO, BSR (Former Vice-Chair)
- Ayas Syed; Assistant divisional director, scheduled care, ABUHB
- Clare Jacklin; CEO, National Rheumatoid Arthritis Society (NRAS)
- Dale Webb; CEO, National Axial Spondyloarthritis Society (NASS)
- Zoe McLaren; Chair, BSR Clinical Affairs Committee
- Gary MacFarlane, Chief Investigator, BSRBR-AS (UoA)
- James Galloway; NEIAA Lead Methodologist, KCL
- Elizabeth Price, NEIAA Clinical Lead, BSR
- Neena Garnavos; Head of Quality Improvement, BSR
- Natalia Plejic; Project Manager, HQIP
- Peter Lanyon; Clinical Lead, GIRFT
- Rachael Ward-Sample; Associate Director, HQIP
- Sarah Gallagher, Clinical Audit Project Manager, BSR
- Callum Coalwood, Clinical Audit Administrator, BSR
- Debbie Wilson, Head of Quality Improvement (Maternity Cover), BSR
- Sam McIntyre, Director of Practice and Quality, BSR
- Shouvik Dass, NHS England
- Meinir Jones, NHS Wales
- Robert Letchford, NHS Wales
- Andrew Bennett, National Clinical Director Musculoskeletal Conditions, NHS England
- Michael Ly, Versus Arthritis
Project Working Group
- Elizabeth Price, NEIAA Clinical Lead, BSR (Incumbent Chair)
- Jo Ledingham; Former NEIAA Clinical Lead and Incumbent President, BSR (Former Chair)
- Zoe McLaren; Chair, BSR Clinical Affairs Committee
- Sarah Gallagher, Clinical Audit Project Manager, BSR
- Callum Coalwood, Clinical Audit Administrator, BSR
- James Galloway; NEIAA Lead Methodologist, KCL
- Sarah Campbell; Former Director of Practice and Quality and Incumbent Chief Executive, BSR
- Neena Garnavos; Head of Quality Improvement, BSR
- Debbie Wilson, Head of Quality Improvement (Maternity Cover), BSR
- Ed Alveyn, Clinical Fellow, KCL
- Lola Birch, Former Clinical QI Fellow, BSR
- Elizabeth Macphie, Consultant Rheumatologist
- Charlotte Sharp, Consultant Rheumatologist
- Ilfita Shabudin, Trainee Representative
- Paul Amlani-Hatcher, Chair, NEIAA Patient Panel
- Roger Stevens, Vice-Chair, NEIAA Patient Panel
- Martin Cripps, Director, Netsolving
- Karen Hodgson, Head of Health Intelligence, Versus Arthritis
- Diana Finney, Nurse Representative
- Georgina Ducker, Nurse Representative
- Jill Firth, Nursing/AHP representative
- Fiona Cramp, Nursing/AHP representative
- Karl Gaffney, Consultant Rheumatologist, AxSpA Representative
|
|