JIA learning collaborative | British Society for Rheumatology

Overview

The Juvenile Idiopathic Arthritis (JIA) Learning Collaborative, JIA Learn, is an exciting new BSR-funded programme, aiming to improve the quality of care for children and young people with new-onset JIA living across the UK.

Clinically led by Dr Gavin Cleary and Dr Flora McErlane, six teams from across the country will work through an improvement collaborative model, coming together in peer-learning events across 18 months to share ideas, learn QI methodology and work towards improving patient care.

Based on co-production with children, young people and their families, we're establishing a joint improvement aim and measuring success through data collection.

Meet our partner RUBIS.Qi

BSR has commissioned RUBIS.Qi to support the programme and provide tailored active help for teams. RUBIS.Qi is the quality improvement and innovation arm of Northumbria Healthcare NHS Foundation Trust.

Meet the teams

We are delighted to be working with six multi-disciplinary teams and patient/family representatives from:

Birmingham Children's Hospital, Birmingham Women's and Children's NHS Foundation Trust
Bristol Royal Hospital for Children, University Hospitals Bristol and Weston Foundation Trust
Great North Children's Hospital, News Hospitals NHS Foundation Trust
Nottingham Children's Hospital, Nottingham University Hospitals NHS Trust
Royal Manchester Children's Hospital, Manchester University NHS Foundation Trust
University College Hospitals NHS Foundation Trust

Meet the faculty

The Collaborative is being chaired and led by Dr Gavin Cleary and Dr Flora McErlane. The chairs are supported by BSR senior manager, Sarah Campbell, and RUBIS.Qi quality improvement advisor and coach, Anna Burhouse and programme manager, Nicola James.

The chair and the expert faculty assist in creating the specific content for the Collaborative, including appropriate aims, measurement strategies, and a list of evidence-based and/or patient-informed changes. An Improvement Advisor teaches and coaches teams on improvement methods and how to apply them in local settings.

Data collection and patient confidentiality

The six successful sites will collect anonymised patient data which will be used to improve the care and support for children, young people, and their families who are living with JIA. All patient data will be handled in accordance with the Caldicott Principles and no information will be shared which could be used to identify the patients or their families.

Contact: QI@rheumatology.org.uk

Useful Links:
BSR's UK JIA Register
Case-based Conference
Paediatric Guidelines from the BSR