Knowledge * Excellence * Guidelines

Guidelines are key to modern health and medical practice. Their recommendations are evidence-based and cover a wide range of topics - managing specific conditions, use of medicines in different settings or services and interventions to improve health. 

NICE has accredited the process used by British Society for Rheumatology to produce its clinical guidance. 

Accreditation is valid for five years from February 2013. 

For full details on our accreditation visit 

View the current Protocol we follow when developing our guidelines.


Easy DNN
/ Categories: Current Guideline

Guideline for the management of adults with Primary Sjögren’s Syndrome

The first UK guideline on the care of adults with Primary Sjögren’s Syndrome is now available. Our guidelines are accredited by the National Institute for Health and Care Excellence (NICE) which recognises robust, evidence-based and critically evaluated high-quality processes applied to developing a clinical guideline.


  1. Sjogren’s is a chronic, debilitating multi-system condition predominantly affecting the moisture producing glands of the body, but also causing systemic effects condition. This guideline clarifies how to manage it far more effectively. 
  2. All patients should be offered topical management for sicca symptoms. Patients struggle with the chronicity of the condition and are frustrated by the paucity of treatment.  It has considerable impact on patients’ quality of life.  Patients often see health professionals from several different specialities because of the varied symptoms but health professionals are still quite likely to under-estimate the overall burden of disease.
  3. Systemic treatment should be considered early in those with constitutional symptoms. 

The guideline is for rheumatologists, ophthalmologists, ear, nose and throat specialists, oral medicine experts and general physicians, dental practitioners, general practitioners and nurses. The Group who wrote the guideline included an expert patient, a GP and an occupational therapist with a special interest in the fatigue and sleep problems suffered by patients with Sjögren’s and other chronic inflammatory conditions.

The guideline concentrates on the issues caused by dryness - dry eyes and mouth with reference to oral candida and salivary gland enlargement. It extends into treatment of systemic disease and the management of pregnancy in affected women. Pharmacological treatments for systemic disease are extensively covered, alongside helpful guidance on treatments that are not recommended. Advice on reporting any painless glandular swelling that doesn’t settle due to the increased risk of lymphoma is promoted, as is the provision of written patient information and the details of appropriate support groups, on-line resources and graded exercise programmes for fatigue. 

Full guideline
Previous Article Guideline for the management of gout
Next Article Guideline for the management of adults with Systemic Lupus Erythematosus
3905 Rate this article:
No rating
Due for Revision2020
Note/AccreditationNICE Accredited

Documents to download

Please login or register to post comments.

Guidelines under revisionDue for publication
mid to late 2017
Will become part of GL above
New guidelines in developmentDue for publication
Q2 2017