British Society for Rheumatology > Knowledge > Influencing Policy and Parliamentary Affairs > Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA)

Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA)

Knowledge * Influencing Policy and Parliamentary Affairs * Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA)

Rare Autoimmune Rheumatic Diseases Alliance (RAIRDA) is a forum established to bring together clinical and patient organisations and other key stakeholders in order to improve care for people living with rare autoimmune rheumatic diseases.

The alliance is made up of the following members and affiliate members.

Members:


Affiliate members:

Latest reports:

Reduce, Improve, Empower report infographic

Reduce, Improve, Empower

Recently RAIRDA published a report looking at the shared experiences of people living with rare autoimmune rheumatic diseases, the impact of these conditions, and their unmet needs in accessing timely and effective healthcare. 

  • 55% of respondents reported feeling either not very or not at all confident in their GP’s knowledge of their condition
  • 61% of respondent’s state that they are struggling to cope with their condition
Read the full report >

A collaborative approach to improving outcomes in rare rheumatic and musculoskeletal diseases

A report outlining a programme of work to improve the care for people with rare inflammatory and autoimmune diseases. It builds upon a national workshop hosted by the society in November 2015, which brought together a range of stakeholders to help raise the priority of these conditions.


Strategy


RAIRDA's strategy involves three key aims for those people living with rare autoimmune diseases.

Find out more >



Want to know more?

If you would like more information about RAIRDA please get in touch with us. 

Contact us >

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